An appeal from my son-in-law…

On October 23, 2016, I will be running the Newburyport Half Marathon. I am asking my friends, family, and anyone else who might be so inclined to help me raise money for the Crohn’s and Colitis Foundation of America (aka the CCFA).  I have never done anything like this before, either the running or the fundraising, so I am pretty nervous about it. So if you could help me out with a donation and/or some words of encouragement, I would be really appreciative.
I want to tell you my story and why I’ve chosen to run this race. As you may or may not know, my wife Julie has suffered from Crohn’s disease and/or ulcerative colitis (collectively known as Inflammatory Bowel Disease of IBD) since before I ever knew her. Julie is kind, funny, giving, caring, whip smart, and the most thoughtful person I know. She is also one of the hardest working people I have ever met. But Crohn’s and UC aren’t easy diseases to deal with, and they often lay her low. She had major surgery when she was 21 and has had regular doctor’s visits ever since.
She’ll run out of energy out of no where, be stopped in her tracks by pain, or be unable to function seconds after feeling okay. She takes innumberable medications, including weekly shots at home and regular visits to the hospital for drug infusions. Julie is also really tough, both mentally and physically, but the combination of pain, fatigue, and other symptoms really take their toll. It is incredibly hard to have to watch her go through it. I try to help out as much as I can, but there really isn’t anything I can do about the condition itself. To say it can be frustrating or even maddening would be a serious understatement.
But I know who I married — like I said, Julie is supremely tough, she hates to lose, and she hates to give up. The fact of the matter is she has no choice but to fight every single moment of every single day. She doesn’t settle for good enough either — she is always fighting for more, for a better life, for one more activity, for one more hour on her feet or out of bed. But when you’re sick, when you have Crohn’s or UC, sometimes you can’t fight for yourself anymore, and (to paraphrase the late Stuart Scott of ESPN, who died of cancer a few years ago), when you are sick and you find that you are too tired to fight, go lay down and let someone else fight for you. So that’s what I’m trying to do — take my fight for Julie and other IBD patients to another level. I will never stop fighting for Julie on a daily basis even though I don’t think I can ever fight as hard as she does for herself, but I wanted to do something more to raise awareness and make a realy difference. Because the doctors, scientists, and researchers will only be able to find a cure to this “cruel and devious” disease unless people raise money to fund their research.
So please, donate a few dollars to help me try and put an end to Crohn’s and Ulcerative Colitis. I will be ever thankful for whatever contributions you might provide.
For further reading, I recommend this article by Joe Posnanski, a writer for NBC Sports who covered the Olympics this past August: http://www.nbcolympics.com/news/joe-posnanski-kathleen-bakers-crohns-disease-isnt-curse — Posnanski has been open about his daughter’s recent diagnosis with Crohn’s and became close with Kathleen Baker, a multiple-Olympic medal winner for the USA in Rio. The article is touching and occassionally difficult to read, but he says a lot of things better than I ever could (I stole the description of Crohn’s as “cruel and devious” from him).
I also think you should read the description of Crohn’s and UC below, which was given to me by the CCFA when I set up this page:
About Crohn’s disease and ulcerative colitis
Crohn’s disease and ulcerative colitis are both major categories of Inflammatory Bowel Diseases (IBD). IBD affects an estimated 1.6 million Americans. These chronic diseases tend to run in families and they affect males and females equally. Crohn’s disease is a chronic inflammatory condition of the gastrointestinal tract and may affect any part from the mouth to the anus. Ulcerative colitis is a chronic inflammatory condition limited to the colon, otherwise known as the large intestine.
The Mission of the Crohn’s & Colitis Foundation of America is: To cure and prevent Crohn’s disease and ulcerative colitis through research, and to improve the quality of life of children and adults affected by these digestive diseases through education and support.
Again, to anyone and everyone who can and does contribute, thank you so, so much from the bottom of my heart. I am going to train hard and run the best race that I can on October 23, 2016, and it would be great to know that I was bringing a lot of my family and friends along for the ride.
Tom (Julie’s husband)
How to contribute:  http://online.ccfa.org/site/TR/TeamChallenge/Chapter-NewEngland?px=1591715&pg=personal&fr_id=6380
Categories: Family, Health | Tags: , , , , | 11 Comments

Post navigation

11 thoughts on “An appeal from my son-in-law…

  1. What a wonderful tribute to Julie! I know how much of a blessing an understanding spouse can be when you have a debilitating and painful disease (I have fibromyalgia). So many people do not comprehend the day-to-day issues.

    My brother-in-law was diagnosed with Crohn’s in his early 30s. Twenty years later he learned he didn’t have Crohn’s. Instead he had a bowel obstruction that wasn’t discovered until NOTHING would pass through his digestive tract.

    I hope for Julie that she finds ways to maintain. I have some IBS issues but have discovered what foods to avoid. It helps a lot and keeps my fibro pain at a minimum. I went to a homeopathic doctor to have this tested.

    I will share your post and donation link.

  2. Thanks, Barbara. That means a lot. Marion

  3. Nell Green

    Thank you Tom for fighting for the one you love and others! You can count on our support!

  4. Voncille Williams

    I’ve been down this painful road w/my oldest son. He nearly died 3 xs before drs knew for sure what was wrong. One of his drs was the same one who treated Werner VonBraun. Long story short – age 25 he had his guts removed and a ‘bag’ installed. He was working for Norad at that time. Like your son’s wife he is extremely bright & extremely funny – qualities that served him well w/extreme adjustments he had to make. Soon he went to Germany where he poured himself into new work – assimilating w/a new culture – became fluent in German & French – & dealt w/all his health issues at the same time. After a few years, a new surgery was developed which he had in Bremmerhaven – an overstaffed military hospital where he received the best of care and attention. He no longer has the ‘bag’ but carries supplies at all times in his backpack and manages to find restrooms on short notice when he travels. I’ll not relate more of his story now except to say that thanks to medical advances my son enjoys good health, an ongoing successful career, traveling the world, enjoying family – all huge blessings. Please know that I wish the same for your son’s wife and that I write these words with a heart full of loving support and prayer as she travels this challenging uphill road.

  5. With you and Julie every step of the way. So grateful for knowing the both of you. GO TOM! GO JULIE!

  6. Anne Walker

    This is an insidious disease. Will be praying for your running preparation and for a cure. Please give an address where I can mail a check and who to make it payable to as I don’t do online giving. Many thanks. Anne Walker. PS. Julie does not really know me but I am longtime friends with her Mom and Dad.

  7. Anonymous

    Bless her Sweet Heart, Praying for All. Will try to donate on line. God Bless🙏🏻😘

  8. Martha Campbell

    My son was diagnosed with Crohn’s Disease at the age of ten. We searched for the best doctors and ended up in NYC with a doctor who trained under Dr. Crohn who discovered this disease. He was on many medications and even some experimental drugs. The thing that helped him the most, however, was diet. He found that cutting out wheat products from his diet gave him the most relief. I know some others who cut out milk products with some success. I highly recommend trying the diet route. It can’t hurt and may help. By the way, my son is now 43 and has run two marathons! Praise God!

  9. Pingback: Re-blog: An appeal from my son-in-law… — Where the Pavement Ends – gut-wrenching truth about crohns

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Blog at WordPress.com.

%d bloggers like this: